“A Day in the Life” – Amy
“A Day in the Life” – Amy I thought it would be beneficial to share a profile of our four,…
“What Are the Odds?” – Laura
“What Are the Odds?” – Laura GAMT is really, really, rare. We all know that! I am sure quite a…
“Milestones” – Laura
“Milestones” – Laura Today watching Levi peddle his bike as fast as his little legs would take him off the…
“Getting Better” – Amy
“Getting Better” – Amy Ben’s recent Creatine Transporter Deficiency (CTD) diagnosis has hit me hard emotionally, so I thought that…
“What About Me?” – Kelly
“What About Me?” – Kelly I’ve made no secret that our family life is somewhat different from the norm. Our…
“Travel Supplements” – Laura
“Travel Supplements” – Laura We recently returned from a very fun and needed vacation to Disneyland! It was magical with…
“The Long and Winding Road” – Amy
“The Long and Winding Road” – Amy Not having a diagnosis for your child when you know something is wrong…
“Saying ‘I Love You'” – Beth
“Saying ‘I Love You’” – Beth It wasn’t until this school year, Benny’s 7th grade year, that we realized he…
“Why Us?!” – Laura
“Why Us?!” – Laura Sometimes it feels like everything just piles up – from the challenges of being diagnosed, seizures,…