“Our Life with Epilepsy” – Nathan
“Our Life with Epilepsy” – Nathan Hello again, CCDS family, sorry it has been a while since I have contributed…
“Let It Be” – Amy
“Let It Be” – Amy As a mom of a child with a rare condition, particularly of my Ben who…
“Whoa” – Janet
“Whoa” – Janet Do you ever have those days or seasons where things are just ‘alot’? I know my family…
“A Day in the Life” – Amy
“A Day in the Life” – Amy I thought it would be beneficial to share a profile of our four,…
“The Long and Winding Road” – Amy
“The Long and Winding Road” – Amy Not having a diagnosis for your child when you know something is wrong…
“Franco’s Journey” – Lisa
“Franco’s Journey” – Lisa This is our story and our journey that led to our son’s diagnosis of CTD. It…
“Our Journey” -Kelly
“Our Journey” – Kelly When Trenton was born in New York, he weighed 7 lbs 2 ounces. Before we left…