“Grieving the Missed Milestones” – Regina
“Grieving the Missed Milestones” – Regina We’ve all been there. Those moments when we witness our kids- or grandkids- struggling…
“A Day in the Life” – Amy
“A Day in the Life” – Amy I thought it would be beneficial to share a profile of our four,…
“Getting Better” – Amy
“Getting Better” – Amy Ben’s recent Creatine Transporter Deficiency (CTD) diagnosis has hit me hard emotionally, so I thought that…
“The Long and Winding Road” – Amy
“The Long and Winding Road” – Amy Not having a diagnosis for your child when you know something is wrong…
“The More Things Change…” – Nathan
“The More Things Change…” – Nathan Greetings friends! Well, it is that time again as I am once more honored…
“1% Chance” – Laura
“1% Chance” – Laura GAMT is so rare, just getting diagnosed seems to be quite an ordeal. I like hearing…
“Why Getting a Diagnosis Is So Much More Than a Label” – Kelly
“Why Getting a Diagnosis Is So Much More Than a Label” – Kelly My daughter Holly (9) & son Isaac…
“On Valentine’s Day” – Nathan
“On Valentine’s Day” – Nathan Well, it’s here friends, February 14th , and according to the automatic reminder on my…
“My little guy” – Jane
“My little guy” – Jane My little guy is now 8 years old and was diagnosed with Creatine Transporter Deficiency…
“The Three P’s” – Beth
“The Three P’s” – Beth My husband likes tattoos. Really likes them. I do not have one spot of ink…