“Are You a 21st Century Pioneer?” – Nancy
“Are You a 21st Century Pioneer?” – Nancy Pioneer. Verb. A person who is among the first to develop or…
“Creating Capacity” – Janet
“Creating Capacity” – Janet When I was faced with the CTD diagnosis of my son, who is now 10, I…
“Atypical Adventures: An Introduction” – Nathan
“Atypical Adventures: An Introduction” – Nathan Hello again, friends! I know it has been a while since I have updated…
“WE’RE IN THIS TOGETHER, Like It or Not” – Nancy
“WE’RE IN THIS TOGETHER, Like It or Not” – Nancy I know I’m one of the lucky ones. We still…
How Pharmacogenomics Hopes to Improve the Treatment of Cerebral Creatine Deficiencies
How Pharmacogenomics Hopes to Improve the Treatment of Cerebral Creatine Deficiencies Kim Tuminello, Director of Advocacy for ACD, recently sat…
“The Paradox of an Aging Special Needs Child” – Beth
The Paradox of an Aging Special Needs Child” – Beth Standing in front of my kitchen sink in the cold,…
“WHO’S GOING TO PROTECT HIM WHEN I’M GONE?” – Nancy
“WHO’S GOING TO PROTECT HIM WHEN I’M GONE?” – Nancy Over-protective. Controlling. Helicopter Mom. Whatever you call it, that’s who…
“CCDS Seizures” – Denise Morita, MD
“CCDS Seizures” – Denise Morita, MD Our son Dylan, who is 5 and was diagnosed with CTD earlier this year,…
“New Year, New Boy?!” – Laura
“New Year, New Boy?!” – Laura Hey everyone! I hope the new year is off to a great start! Levi…
“Expectations” – Nathan
“Expectations” – Nathan Good day friends! As I am traveling a bit with work right now, I have begun to…