“Notes from the 2023 Virtual Conference” —Kim
Notes from the 2023 Virtual Conference, General Sessions –Kim In 2022, I visited a full CCDS symposium for the first time….
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“How Gio’s Diagnosis Affected Us” -Sylvia
“How Gio’s Diagnosis Affected Us” –Sylvia In 2019 I was planning to have a hysterectomy due to my endometriosis, but…
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“Our Life with Epilepsy” – Nathan
“Our Life with Epilepsy” – Nathan Hello again, CCDS family, sorry it has been a while since I have contributed…
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“Creating Capacity” – Janet
“Creating Capacity” – Janet When I was faced with the CTD diagnosis of my son, who is now 10, I…
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“Share Your Rare” – Regina
“Share Your Rare” – Regina I had the recent pleasure of attending an event hosted by the Oklahoma Rare Action…
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“Discussions from the Society for Inherited Metabolic Disorders (SIMD) Meeting” – Tony
“Discussions from the Society for Inherited Metabolic Disorders (SIMD) Meeting” – Tony The Society for Inherited Metabolic Disorders (SIMD) holds…
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“Making Friends” – Nancy
“Making Friends” – Nancy When your child is different, there are a lot of worries. We worry about their health;…
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“Obtain, Maintain, Sustain” – Regina
“Obtain, Maintain, Sustain” – Regina Immediately following Caiden’s birth, we knew he was facing many struggles. We had a lot…
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“Realignment” – Nathan
“Realignment” – Nathan Good day again readers! I hope everyone has been enjoying the warmer days and (hopefully) sunny weather. …
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“The Advocate, The Meanie, The Mom…” – Regina
“The Advocate, The Meanie, The Mom…” – Regina My oldest child, Chelsi, my first born, my 18th birthday present, and…
