“With a Little Help from My Friends” – Amy
“With a Little Help from My Friends” – Amy Before we found out about Ben’s Creatine Transporter Deficiency (CTD) diagnosis,…
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“A Typical Day for Our Family” – Nathan
Our typical day and what our boys experience with CTD.
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“Grieving the Missed Milestones” – Regina
“Grieving the Missed Milestones” – Regina We’ve all been there. Those moments when we witness our kids- or grandkids- struggling…
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“Expectations” – Nathan
“Expectations” – Nathan Good day friends! As I am traveling a bit with work right now, I have begun to…
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“Back to Blogging” – Janet
“Back to Blogging” – Janet I love reading special needs blogs. They have lifted me up and carried me through…
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“Because” – Amy
“Because” – Amy At the end of the year, I like to reflect back so I can look forward and…
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“Getting Better” – Amy
“Getting Better” – Amy Ben’s recent Creatine Transporter Deficiency (CTD) diagnosis has hit me hard emotionally, so I thought that…
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“1% Chance” – Laura
“1% Chance” – Laura GAMT is so rare, just getting diagnosed seems to be quite an ordeal. I like hearing…
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“Why Getting a Diagnosis Is So Much More Than a Label” – Kelly
“Why Getting a Diagnosis Is So Much More Than a Label” – Kelly My daughter Holly (9) & son Isaac…
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“On Valentine’s Day” – Nathan
“On Valentine’s Day” – Nathan Well, it’s here friends, February 14th , and according to the automatic reminder on my…
