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Holiday Heroes

As you know, Lucas has a rare, currently untreatable, genetic condition called Creatine Transporter Deficiency. There are only about 350 cases in the world—all children that will not lead a normal life. It’s been 21 years since CTD was discovered and the needle is finally starting to move on research.

Last year, our parent group raised $94k for Gene Therapy research and drug development. While this may seem like a lot, much more is needed to fund these expensive projects. This year, we are aiming to raise $250,000 to drive research for Cerebral Creatine Deficiency Syndromes in 2022. We know this is ambitious, but we are confident that we can achieve this goal with your help!

This holiday season, we invite you to give alongside us. Lucas needs heroes! Every little bit counts and makes a difference.

The Allen Family will match every dollar donated in Lucas’ name through the end of year. Please help us write our biggest check ever to drive research and innovation in support of Lucas and the hundreds of other kiddos with CTD.

Happy and healthy holidays!

Have you ever heard of Cerebral Creatine Deficiency Syndrome? Neither had we until our son Lucas was diagnosed with the rare genetic brain disorder. After 15+ months of countless appointments, tests, scans and specialists he was diagnosed Creatine Transporter Deficiency (CTD). His brain is unable to receive the creatine necessary to intellectually develop like your everyday kiddo. Although his future is unknown, ACD is leading the charge to bring answers and solutions to Lucas and hundreds of others like him. The promise for a bright future is on the horizon.

Check out this USA Today article to learn more and bring awareness to families in search for answers and understanding.