Cadman

Help Us Reach Our Family’s Goal!

About Cadman

Cadman is 9 years old and has Creatine Transporter Deficiency (CTD). He loves swimming, playing on swings and slides, throwing balls, thinks anything stinky or yucky is hilarious, is a big fan of Blippi, and adores his little sister Emma.

Developmental milestones have all come very slowly for Cadman and each one is cause for lots of celebration in our house. This year, Cadman learned to fill his own water cup and can now recognize most letters in the alphabet and is starting to work on some reading goals at school. He had a rough start to 2024 with the return of seizures–he had three seizures in one day, an ambulance ride and an overnight stay in the hospital. He is now back on seizure meds which seems to be working well to keep the seizures away thankfully.

We look forward to Holiday Heroes each year when we get to surround Cadman with so much love and support, and raise funds for ongoing research efforts to find a treatment and eventually a cure for CTD.

Holiday Heroes 2024

Holiday Heroes is ACD’s year-end fundraiser and all funds raised are dedicated to research.

ACD has been promised a donation of $125,000 when $200,000 has been raised. This is will be ACD’s largest ever single donation and will be monumental for next year’s CCDS research! Your help will go farther this year than ever before!

Children with Creatine Deficiencies are severely impacted in their daily lives by:

  • Seizures
  • Lack of Speech
  • Intellectual Disability
  • Autism
  • Behavioral Issues
  • And more…

Your donation will fund research to change this! 

ACD has some very promising research initiatives underway. Additional funding will expand these efforts and launch new projects, such as:

  • The next phases of promising research projects (2 large projects began in 2024)
  • New fellowship grants to early career researchers (5 were awarded in 2024)
  • Creatine Deficiency Research Centers (multi-project CCDS research institutions; University of Utah was launched in 2023)
  • New projects with a focus on therapeutic development (proposals under review)

Thank you for being a Holiday Hero!

We can’t do this without you. Please donate today to fund CCDS research.

Questions? Contact ACD.