Join us for ACD’s 9th annual Walk for Strength–an event that unites people around the world in raising awareness for Cerebral Creatine Deficiency Syndromes (CCDS). We are once again gathering with all those who love and support Cadman in a show of strength and to raise awareness and funds to find a treatment for Creatine Transporter Deficiency. We are excited to celebrate all the progress and momentum that has been made this past year, as we continue marching toward that cure!
The CCDS Community has banded together and successfully launched 4 Young Investigator Fellowships in 2024, Dr. Filippo Ingoglia’s study of CTD patients with residual creatine transporter activity, and drug repurposing research led by Drs. Sylvia Stockler and Peter Axerio-Cilies. With the support of our community, there will be even more progress in 2024!
As CCDS research progresses and we continue to toward our goal of clinical trials, our community’s support in Walk for Strength is building important momentum. When you participate in this event and support Cadman, as well as all those affected by creatine deficiencies, you are part of a global effort that sends an important message to the research community: we are serious and committed to finding cures!
Cadman is 9 years old and has Creatine Transporter Deficiency (CTD). He loves swimming, playing on swings and slides, throwing balls, thinks anything stinky or yucky is hilarious, is a big fan of Blippi, and adores his little sister Emma. Developmental milestones have all come very slowly for Cadman and each one is cause for lots of celebration in our house. This year, Cadman learned to fill his own water cup and can now recognize most letters in the alphabet and is starting to work on some reading goals at school. He had a rough start to 2024 with the return of seizures–he had three seizures in one day, an ambulance ride and an overnight stay in the hospital. He is now back on seizure meds which seems to be working well to keep the seizures away thankfully. We look forward to the Walk for Strength each year when we get to surround Cadman with so much love and support, and raise funds for ongoing research efforts to find a treatment and eventually a cure for CTD.
