Asher’s Story
Asher’s Story Asher is 6 and has been thriving in his transitional kindergarten class. He’s full of joy and curiosity,…
Cadman’s Story
Cadman’s Story Cadman is 9 years old and has Creatine Transporter Deficiency (CTD). He loves swimming, playing on swings and…
Stijn and Julian’s Story
Stijn and Julian’s Story Meet Stijn Stijn was born 3 weeks early in February of 2010. Due to my high…
Macie’s Story
Macie’s Story “Macie’s story is an inspiring example of how early detection and intervention can change a child’s life and…
Jacob’s Story
Jacob’s Story Jacob underwent years of medical testing, procedures, and medications before being appropriately diagnosed with CTD at the age…
“Does It Get Easier”—Chelsi
“Does It Get Easier” —Chelsi Does living with CTD ever get any easier? When the burst of behaviors starts and…
“Notes from the 2023 Virtual Conference” —Kim
Notes from the 2023 Virtual Conference, General Sessions –Kim In 2022, I visited a full CCDS symposium for the first time….
“How Gio’s Diagnosis Affected Us” -Sylvia
“How Gio’s Diagnosis Affected Us” –Sylvia In 2019 I was planning to have a hysterectomy due to my endometriosis, but…
No Limits
“No Limits” — Lacy One of the hardest things about learning your child has a disability is the limits that…
“Our Experience of CTD” – Kayla
“Our Experience of CTD” – Kayla We’ve shared that Creatine Transporter Deficiency (CTD) can cause seizures, speech, intellectual, and motor…