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Home / CCDS Family Stories - Page 5

CCDS Family Stories

Man running in a race.
CCDS Family Stories

“IRONMAN Lake Placid Recap” – Jerry

Byacd_master August 7, 2019October 15, 2025

“IRONMAN Lake Placid Recap” – Jerry My fourth Ironman is in the books. Lake Placid, New York is a beautiful place…

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Three brothers in strollers and three more brothers pushing the strollers in the forest.
CCDS Family Stories

“Atypical Adventures: An Introduction” – Nathan

Byacd_master July 15, 2019October 15, 2025

“Atypical Adventures: An Introduction” – Nathan Hello again, friends! I know it has been a while since I have updated…

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Man sitting in a chair on a deck.
CCDS Family Stories | Creatine Transporter Deficiency (CTD)

“WE’RE IN THIS TOGETHER, Like It or Not” – Nancy

Byacd_master July 7, 2019October 15, 2025

“WE’RE IN THIS TOGETHER, Like It or Not” – Nancy I know I’m one of the lucky ones. We still…

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Two boys at an Easter egg hunt
CCDS Family Stories

“Making Friends” – Nancy

Byacd_master May 9, 2019October 8, 2025

“Making Friends” – Nancy When your child is different, there are a lot of worries. We worry about their health;…

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“The Paradox of an Aging Special Needs Child” – Beth
CCDS Family Stories | GAMT Deficiency

“The Paradox of an Aging Special Needs Child” – Beth

Byacd_master March 26, 2019October 8, 2025

The Paradox of an Aging Special Needs Child” – Beth Standing in front of my kitchen sink in the cold,…

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Parents and son in a field with a red tractor behind them.
CCDS Family Stories

“WHO’S GOING TO PROTECT HIM WHEN I’M GONE?” – Nancy

Byacd_master March 5, 2019October 8, 2025

“WHO’S GOING TO PROTECT HIM WHEN I’M GONE?” – Nancy Over-protective. Controlling. Helicopter Mom. Whatever you call it, that’s who…

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Boy pointing to a word on the white board in school.
CCDS Family Stories

“Obtain, Maintain, Sustain” – Regina

Byacd_master February 14, 2019October 8, 2025

“Obtain, Maintain, Sustain” – Regina Immediately following Caiden’s birth, we knew he was facing many struggles. We had a lot…

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Family photo of a mother and father and their two children.
CCDS Family Stories | Creatine Transporter Deficiency (CTD)

“Super Bowl Sunday 2017—Diagnosis Day” – Erin

Byacd_master February 3, 2019October 15, 2025

“Super Bowl Sunday 2017—Diagnosis Day” – Erin Super Bowl Sunday marks two years since we officially received Cadman’s diagnosis. It…

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Three brothers in strollers at an amusement park.
CCDS Family Stories | Creatine Transporter Deficiency (CTD)

“The Life of Alfred” – Nathan

Byacd_master February 1, 2019October 15, 2025

“The Life of Alfred” – Nathan Every kid dreams of growing up to be a superhero. I can remember running…

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Brother and sister hug in front of the Christmas tree.
CCDS Family Stories | Creatine Transporter Deficiency (CTD)

“Christmastime” – Lacy

Byacd_master December 20, 2018October 15, 2025

“Christmastime” – Lacy I love this time of year! I love snuggling with my kids beside the soft glow of…

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