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CCDS Family Stories

CCDS Family Stories | Creatine Transporter Deficiency (CTD)

“Realignment” – Nathan

Byacd_master May 30, 2018October 27, 2022

“Realignment” – Nathan Good day again readers! I hope everyone has been enjoying the warmer days and (hopefully) sunny weather. …

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CCDS Family Stories | Creatine Transporter Deficiency (CTD)

“Perseveration of Speech” – Janet

Byacd_master May 23, 2018October 27, 2022

“Perseveration of Speech” – Janet Hi everyone out there! I hope everyone is doing great. Just to fill you in…

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Creatine Transporter Deficiency (CTD)

“The Advocate, The Meanie, The Mom…” – Regina

Byacd_master May 14, 2018October 27, 2022

“The Advocate, The Meanie, The Mom…” – Regina My oldest child, Chelsi, my first born, my 18th birthday present, and…

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Little girl smiling and holding a book
CCDS Family Stories | GAMT Deficiency

“Traveling with Special Needs” – Randi

Byacd_master April 15, 2018October 15, 2025

“Traveling with Special Needs” – Randi Everyday life with special needs children can be challenging. But one adjusts to the…

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CCDS Family Stories | Creatine Transporter Deficiency (CTD)

“Speed Doesn’t Matter, Forward Is Forward” – Shelly

Byacd_master April 12, 2018October 27, 2022

“Speed Doesn’t Matter, Forward Is Forward” – Shelly If you read my previous post then you know we received our…

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CCDS Family Stories

“Happy Kid” – Laura

Byacd_master April 4, 2018October 27, 2022

“Happy Kid” – Laura One of Levi’s greatest attributes is his positive attitude. Things really can’t get him down. This…

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CCDS Family Stories | Creatine Transporter Deficiency (CTD)

“With a Little Help from My Friends” – Amy

Byacd_master March 29, 2018October 27, 2022

“With a Little Help from My Friends” – Amy Before we found out about Ben’s Creatine Transporter Deficiency (CTD) diagnosis,…

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CCDS Family Stories | Creatine Transporter Deficiency (CTD)

“A Typical Day for Our Family” – Nathan

Byacd_master March 25, 2018December 5, 2022

Our typical day and what our boys experience with CTD.

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CCDS Family Stories | Creatine Transporter Deficiency (CTD)

“The Power of Music” – Beth

Byacd_master March 21, 2018October 27, 2022

“The Power of Music” – Beth “Have you ever had non-verbal students in your choir before?” I asked the junior…

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CCDS Family Stories | Creatine Transporter Deficiency (CTD)

“Do We Have a Bad Neighbor?” – Janet

Byacd_master February 27, 2018October 27, 2022

“Do We Have a Bad Neighbor?” – Janet Happy 2018 everyone!! We live in Canada and have been dealing with…

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