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November 2020

Holiday Heroes Fundraiser

November 1 - December 31

Holiday Heroes is our annual fundraiser and this year we will be fundraising to support the continuation of Gene Therapy Advancement Awards in 2021  as well as another special research project to be announced. Look for more information to be posted in the coming weeks. Learn more about the initiatives funded by the 2020 Holiday Heroes at ACD's research strategy page and the Gene Therapy Consortium page.

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February 2021

CCDS Day 2021

February 1, 2021

On February 1, 2021, join us in raising awareness of the three CCDS- AGAT, GAMT, and CTD. This year's shirt "Powered by Creatine" will be available in the ACD shop soon. Submit a family picture to info@creatineinfo.org by January 31, 2021, with a 1-2 sentence quote about how your family has found power in their CCDS diagnosis and we'll feature you on social media. Share our post on your own social media feeds and you'll be giving a shout out…

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