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February 2021

CCDS Day 2021

February 1

  CCDS Day 2021 is February 1st. How has CCDS changed your story? If you’d like to participate in our #CCDSDay2021 Campaign, send us a picture of your child/family and a quote answering this question. Email [email protected]  Please also sign and complete this release form, giving us permission to share your picture and quote.

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Rare Disease Day 2021

February 28 @ 8:00 am - 11:30 pm MST

February 28th is Rare Diseases Day. This year, we will raise awareness AND empower research!  Join the CreatineInfo Registry on February 28th.  Together we will search for answers and help move research forward. To learn more, contact [email protected] or sign up for updates here: https://bit.ly/ACDpatientregistry.

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CreatineInfo Registry Launch

February 28 @ 8:00 am - 11:30 pm MST

This Rare Disease Day, your story helps to further research! The ACD, in partnership with NORD, is launching a Natural History Study Patient-reported Registry on February 28th. Join the registry and help us further research for a better quality of life for those impacted by Creatine Deficiencies.

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