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Latest Past Events
CCDS Expert Panel Webinar #4
Learn more about the Expert Panel webinar series and register here.
2023 CCDS Virtual Conference – Caregiver Session
The Caregiver Session is scheduled one week prior to the main conference sessions and will focus on parent training in the following categories: supporting sibling relations and the non-CCDS sibling experience, sleep training for CCDS patients, and identifying and managing CCDS behavior challenges. Visit the conference page and register today by clicking here!
CreatineInfo Registry Launch
The ACD, in partnership with NORD, is launching a Natural History Study Patient-reported Registry on March 15th. Join the registry and help us further research for a better quality of life for those impacted by Creatine Deficiencies. Join at creatineinfo.iamrare.org.