Attendance at the Global Genes Rare Patient Advocacy 2014 Summit Huntington Beach, California September 2014 The ACD attended the 2014 Global Genes Allies and Rare Disease Advocacy Summit, in Huntington Beach, California. At this year’s event, the ACD left with helpful information and new contacts. We attended workshops to learn more about Patient Registries, Grant […]
Exhibit at the 43rd Child Neurology Society (CNS) Meeting Columbus, Ohio October 22 – 25, 2014 The ACD was thrilled to exhibit at the Child Neurology Society 2014 Meeting. All five ACD Board Members were in attendance. The CNS Scientific Meeting is designed by, and is primarily intended for, child neurologists and professionals in fields […]
The Pediatric Grand Rounds Rare Disease Day Event February 27, 2015 Kim Tuminello, ACD President Presented
Exhibit at The 2015 ACMG Conference 2015 ACMG Conference Salt Lake City, Utah March 24 – 28, 2015
Attendance at Global Genes Rare Patient Advocacy Summit Global Genes Summit Huntington Beach, California September 24 – 25, 2015
Exhibit at The 44th Annual Child Neurology Society (CNS) Meeting CNS Annual Meeting Gaylord National (Outside of Washington, DC) October 7 – 10, 2015
Exhibit at the "U.R. Our Hope" Rare Disease Day "Cup of Hope" Chili Cook-Off Kyle, Texas February 20, 2016 The ACD attended the "U.R. Our Hope" chili cook-off in Kyle, Texas. It was a great event and raised more awareness of cerebral creatine deficiencies in the community. We even saw some folks from Lumos there. […]
Exhibit at the 2016 Annual Clinical Genetics (ACMG) Meeting Tampa, Florida March 8 – 12, 2016 Whitnie Strauss, Kim Tuminello, and Laura Martin from ACD along with Jodi Keene, all attended the American College of Medical Genetics and Genomics (ACMG) Annual Clinical Genetics Meeting 2016 at the Tampa Convention Center, Tampa, Florida. The targeted audience for this medical […]
Exhibit at Autism Speaks Walk: Los Angeles Pasadena, California April 2, 2016 Thousands attended the Walk Now for Autism Speaks event at the Rose Bowl in Pasadena, California. Opening ceremonies for the 14th annual 5K event kicked off at 9 a.m. The walk benefited autism research and programs to raise awareness. With a very high […]
(NINDS) National Institute of Neurological Disorders and Stroke Nonprofit Forum Bethesda, Maryland September 13 – 14, 2016
