Walk for Strength 2022
Join us on Saturday, August 20th, 2022 for the ACD's 7th annual Walk for Strength! Visit our Walk for Strength 2022 page to learn more, set up your team and […]
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Virtual Town Hall with Ultragenyx: Updates on the Vigilan Study
Do you have questions about the recent changes announced by Ultragenyx to the Vigilan Natural History Study? ACD is hosting a virtual town hall event on Friday, Oct. 14, from […]
CCDS Expert Panel Community Webinar
Learn more and register for the webinar series here.
Holiday Heroes 2022
Holiday Heroes 2022 is here! Learn more about this year's campaign goals and how you can participate here.
EL-PFDD Introductory Webinar
Join us on Dec 8, 2022 at 2:30 PM ET for an introductory webinar aimed at providing an overview of EL-PFDD meetings, including more about the format, purpose, and goals […]
CCDS Sibshops
Calling all CCDS siblings! We're excited to announce that ACD is partnering with Sibshops to provide a space for siblings to connect and receive peer support in a fun environment. […]
Externally-Led Patient Focused Drug Development (EL-PFDD) Meeting on Cerebral Creatine Deficiency Syndromes (CCDS)
Learn more and register here.
CCDS Day 2023
Learn how you can participate in the #CCDSDay2023 campaign here.
CCDS Expert Panel Community Webinar
Learn more and register for the webinar series here.
CCDS Sibshops
Calling all CCDS siblings! We're excited to announce that ACD is partnering with Sibshops to provide a space for siblings to connect and receive peer support in a fun environment. […]