Exhibit at Autism Speaks Walk: Los Angeles Pasadena, California April 2, 2016 Thousands attended the Walk Now for Autism Speaks event at the Rose Bowl in Pasadena, California. Opening ceremonies for the 14th annual 5K event kicked off at 9 a.m. The walk benefited autism research and programs to raise awareness. With a very high […]
(NINDS) National Institute of Neurological Disorders and Stroke Nonprofit Forum Bethesda, Maryland September 13 – 14, 2016
Exhibit at the Society for Developmental and Behavioral Pediatrics (SDBP) Savannah, Georgia September 17 – 19, 2016 Tony Parker and Melissa Parker
Attendance at Global Genes Rare Patient Advocacy Summit Huntington Beach, CA September 22 – 24, 2016 Global Genes is the leading rare disease advocacy organization with global reach to the worldwide community of rare disease patients, caregivers, advocates, and clinical partners. This conference was the 3rd year that the ACD had attended in Huntington Beach, […]
Attendance at National Organization for Rare Diseases (NORD) Washington, DC October 17-18, 2016
Exhibit at the Child Neurology Society (CNS) Annual Meeting 2016 Vancouver, BC October 26 – 29, 2016 The Child Neurology Society (CNS) 2016 meeting was an excellent opportunity to collaborate with industry, clinicians, and patient advocates. ACD’s attendees discussed the importance of continued education around neurodevelopmental disorders and we were honored with the opportunity to attend […]
CTD Workshop Paris, France December 5 - 6, 2016 The ACD was honored to attend the CTD workshop, organized by Dr. Aurore Curie, Dr. Vincent des Portes and representatives of DeficSience and Xtraordinaire. For two days, CTD held center stage. Discussions focused on the disease itself, importance of collecting natural history data, potential intervention therapies, […]
CCDS Day & Rare Disease Day In 2017 we celebrated our first Cerebral Creatine Deficiency Syndrome Awareness Day on February 1st. This is a fitting time of year to recognize the importance of these rare disorders, as the world-wide Rare Disease Day falls on February 28th. The month was filled with posts of support and […]
American College of Medical Genetics Conference 2017 Phoenix, AZ March 22-24, 2017 The 2017 ACMG conference in Phoenix, Arizona was well attended by geneticists from all over the world as well as other allied health care members. The ACD was privileged to speak with hundreds of attendees that visited their booth, including Dr. Simona Bianconi […]
MedX- Stanford University Abstract Presentation: Benefitting the Rare Disease Community Through Collaboration, April 22-23, 2017
