December 5 – 6, 2016
The ACD was honored to attend the CTD workshop, organized by Dr. Aurore Curie, Dr. Vincent des Portes and representatives of DeficSience and Xtraordinaire. For two days, CTD held center stage. Discussions focused on the disease itself, importance of collecting natural history data, potential intervention therapies, and the need for clinical trials. The call for a CTD treatment is getting louder. With data provided by our patient community, we were able to share the patient perspective relating to natural history outcomes and feelings surrounding clinical trials. The ACD’s CTD Presentation can be viewed here.