“Warning: Rant Up Ahead” – Beth
“Warning: Rant Up Ahead” – Beth I feel like my previous entries have been thoughtful and reflective, and admittedly, very…
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“The Happiest Person I Know” – Kyle
“The Happiest Person I Know” – Kyle A couple of months ago, I was asked to write a blog about…
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GAMT Newborn Screening Update – Kim
GAMT Newborn Screening Update – Kim In May, the ACD met with the Advisory Committee on Heritable Disorders in Newborns…
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“Spiro and I” – Janet
“Spiro and I” – Janet My Creatine Transporter Deficiency journey began September 5th, 2009 with the birth of my son…
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“Run” – Nathan
“Run” – Nathan Greetings again friends! While I had a post all written about expectations for this week, I just…
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“The Seizure Battle” – Heidi
“The Seizure Battle” – Heidi When Samantha was five, she began having absence seizures. The quick, least scary type of…
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“The One in the Middle” – Beth
“The One in the Middle” – Beth With the GAMT diagnosis of two of our children, our unaffected middle child…