“Getting Better” – Amy
“Getting Better” – Amy Ben’s recent Creatine Transporter Deficiency (CTD) diagnosis has hit me hard emotionally, so I thought that…
-
-
“What About Me?” – Kelly
“What About Me?” – Kelly I’ve made no secret that our family life is somewhat different from the norm. Our…
-
“Travel Supplements” – Laura
“Travel Supplements” – Laura We recently returned from a very fun and needed vacation to Disneyland! It was magical with…
-
“The Long and Winding Road” – Amy
“The Long and Winding Road” – Amy Not having a diagnosis for your child when you know something is wrong…
-
“Why Us?!” – Laura
“Why Us?!” – Laura Sometimes it feels like everything just piles up – from the challenges of being diagnosed, seizures,…
-
“1% Chance” – Laura
“1% Chance” – Laura GAMT is so rare, just getting diagnosed seems to be quite an ordeal. I like hearing…
-
“Why Getting a Diagnosis Is So Much More Than a Label” – Kelly
“Why Getting a Diagnosis Is So Much More Than a Label” – Kelly My daughter Holly (9) & son Isaac…
-
“On Valentine’s Day” – Nathan
“On Valentine’s Day” – Nathan Well, it’s here friends, February 14th , and according to the automatic reminder on my…
-
“My little guy” – Jane
“My little guy” – Jane My little guy is now 8 years old and was diagnosed with Creatine Transporter Deficiency…
-
“The Three P’s” – Beth
“The Three P’s” – Beth My husband likes tattoos. Really likes them. I do not have one spot of ink…
