Q&A With Dr. Ton DeGrauw— New Board Member
Q&A With Dr. Ton DeGrauw— New Board Member The Association for Creatine Deficiencies (ACD) welcomes Dr. Ton DeGrauw as part…
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“WHO’S GOING TO PROTECT HIM WHEN I’M GONE?” – Nancy
“WHO’S GOING TO PROTECT HIM WHEN I’M GONE?” – Nancy Over-protective. Controlling. Helicopter Mom. Whatever you call it, that’s who…
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“Obtain, Maintain, Sustain” – Regina
“Obtain, Maintain, Sustain” – Regina Immediately following Caiden’s birth, we knew he was facing many struggles. We had a lot…
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“Super Bowl Sunday 2017—Diagnosis Day” – Erin
“Super Bowl Sunday 2017—Diagnosis Day” – Erin Super Bowl Sunday marks two years since we officially received Cadman’s diagnosis. It…
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“The Life of Alfred” – Nathan
“The Life of Alfred” – Nathan Every kid dreams of growing up to be a superhero. I can remember running…
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“GAMT Novel Therapeutics” – Andreas Schulze, MD PhD FRCPC
“GAMT Novel Therapeutics” – Andreas Schulze, MD PhD FRCPC The ACD Conference held in Austin, TX in July 2018 was…
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“#MyGivingStory” – Chuck
“#MyGivingStory” – Chuck This story was shared with #MyGivingStory in connection with the Giving Tuesday initiative. #MyGivingStory shares the stories…
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“Life With CTD” – Chelsi
“Life With CTD” – Chelsi Hello, my name is Chelsi and I have CTD. 23 years have come and gone…
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#SeasonofSmiles – Whitnie
#SeasonofSmiles – Whitnie As we approach the holiday season, it is customary to reflect and give thanks for the blessings…
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“What Are the Odds?” – Laura
“What Are the Odds?” – Laura GAMT is really, really, rare. We all know that! I am sure quite a…
