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Creatine Deficiency

“The Paradox of an Aging Special Needs Child” – Beth
CCDS Family Stories | GAMT Deficiency

“The Paradox of an Aging Special Needs Child” – Beth

Byacd_master March 26, 2019October 8, 2025

The Paradox of an Aging Special Needs Child” – Beth Standing in front of my kitchen sink in the cold,…

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Association for Creatine Deficiencies

Q&A With Dr. Ton DeGrauw— New Board Member

Byacd_master March 23, 2019December 5, 2022

Q&A With Dr. Ton DeGrauw— New Board Member The Association for Creatine Deficiencies (ACD) welcomes Dr. Ton DeGrauw as part…

Read More Q&A With Dr. Ton DeGrauw— New Board MemberContinue

Parents and son in a field with a red tractor behind them.
CCDS Family Stories

“WHO’S GOING TO PROTECT HIM WHEN I’M GONE?” – Nancy

Byacd_master March 5, 2019October 8, 2025

“WHO’S GOING TO PROTECT HIM WHEN I’M GONE?” – Nancy Over-protective. Controlling. Helicopter Mom. Whatever you call it, that’s who…

Read More “WHO’S GOING TO PROTECT HIM WHEN I’M GONE?” – NancyContinue

Boy pointing to a word on the white board in school.
CCDS Family Stories

“Obtain, Maintain, Sustain” – Regina

Byacd_master February 14, 2019October 8, 2025

“Obtain, Maintain, Sustain” – Regina Immediately following Caiden’s birth, we knew he was facing many struggles. We had a lot…

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Family photo of a mother and father and their two children.
CCDS Family Stories | Creatine Transporter Deficiency (CTD)

“Super Bowl Sunday 2017—Diagnosis Day” – Erin

Byacd_master February 3, 2019October 15, 2025

“Super Bowl Sunday 2017—Diagnosis Day” – Erin Super Bowl Sunday marks two years since we officially received Cadman’s diagnosis. It…

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CCDS Family Stories

“Hook ‘em Horns” – Laura

Byacd_master November 5, 2018October 28, 2022

“Hook ‘em Horns” – Laura I know those who attended the conference in Texas this summer will all agree that…

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Sonnet walking smiling
CCDS Family Stories | GAMT Deficiency

“Enriching Her Life With Therapies” – Randi

Byacd_master June 29, 2018October 14, 2025

“Enriching Her Life With Therapies” – Randi Since Sonnet wasn’t diagnosed with GAMT until she was seven-years-old, she is severely…

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CCDS Family Stories | Creatine Transporter Deficiency (CTD)

“That Friend” – Shelly

Byacd_master June 15, 2018October 27, 2022

“That Friend” – Shelly I feel like all us parents of special need kiddos have that one person who is…

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“Summer!” – Laura
CCDS Family Stories | GAMT Deficiency

“Summer!” – Laura

Byacd_master June 11, 2018October 14, 2025

“Summer!” – Laura Summer is the most coveted time of the year around our house… AND IT’S HERE!!! Both boys…

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CCDS Family Stories | Creatine Transporter Deficiency (CTD)

“Speed Doesn’t Matter, Forward Is Forward” – Shelly

Byacd_master April 12, 2018October 27, 2022

“Speed Doesn’t Matter, Forward Is Forward” – Shelly If you read my previous post then you know we received our…

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