“Are You a 21st Century Pioneer?” – Nancy
“Are You a 21st Century Pioneer?” – Nancy Pioneer. Verb. A person who is among the first to develop or…
“IRONMAN Lake Placid Recap” – Jerry
“IRONMAN Lake Placid Recap” – Jerry My fourth Ironman is in the books. Lake Placid, New York is a beautiful place…
“The Paradox of an Aging Special Needs Child” – Beth
The Paradox of an Aging Special Needs Child” – Beth Standing in front of my kitchen sink in the cold,…
Q&A With Dr. Ton DeGrauw— New Board Member
Q&A With Dr. Ton DeGrauw— New Board Member The Association for Creatine Deficiencies (ACD) welcomes Dr. Ton DeGrauw as part…
“WHO’S GOING TO PROTECT HIM WHEN I’M GONE?” – Nancy
“WHO’S GOING TO PROTECT HIM WHEN I’M GONE?” – Nancy Over-protective. Controlling. Helicopter Mom. Whatever you call it, that’s who…
“Getting Better” – Amy
“Getting Better” – Amy Ben’s recent Creatine Transporter Deficiency (CTD) diagnosis has hit me hard emotionally, so I thought that…
“The Long and Winding Road” – Amy
“The Long and Winding Road” – Amy Not having a diagnosis for your child when you know something is wrong…
“The More Things Change…” – Nathan
“The More Things Change…” – Nathan Greetings friends! Well, it is that time again as I am once more honored…
“1% Chance” – Laura
“1% Chance” – Laura GAMT is so rare, just getting diagnosed seems to be quite an ordeal. I like hearing…
“Why Getting a Diagnosis Is So Much More Than a Label” – Kelly
“Why Getting a Diagnosis Is So Much More Than a Label” – Kelly My daughter Holly (9) & son Isaac…