Tag Archives: Newborn Screening

“Levi” – Laura My name is Levi. I am 5 years old and ALL boy. I love everything life has to offer me. I am an easy going, BUSY, happy, […]

“Our Gifts” – Nathan Happy New Year friends! Have you made your resolutions yet? To be honest I don’t do resolutions, I plan for contributions. So, with that in mind, […]

“Strongest Kids God Created” – Sarah I thought this post I would write about some of the things I guess us parents all go through, at some point or other. […]

“Asking for Help” – Beth I broke my arm about two months ago. I’m 41 and I tried to ride a skateboard. It didn’t work out. It seemed like a […]

“CTD Workshop Recap” – Whitnie When they say Paris is magical, it’s true. The ACD was honored to attend the CTD workshop, organized by Dr. Aurore Curie, Dr. Vincent des […]

“Unruffled Feathers” – Janet Approximately every month my kids’ school has a P.A. Day.  These are well deserved breaks for the kids and this month allowed me to spend my […]

“Grateful” – Mikelle I’m grateful for so many little miracles in my life. Every time I watch Max play soccer or hear him bounce the basketball, I am grateful. There […]

“Thanksgiving” – Nathan Thanksgiving is upon us friends, and let me personally wish each and every reader a Happy Thanksgiving! (Those of you not in the United States, feel free […]

“Less Than One Percent” – Kelly I would have never guessed in a million years that I would have a child who has CTD. I mean, who has even ever […]

“Bravery” – Beth I woke up this morning with anxiety. We needed to change my daughter’s g-tube today. Through the course of treatment for GAMT, it became clear that she needed […]