“William’s Big School Journey” – Jess
“William’s Big School Journey” – Jess My son William (5), has CTD, and started big school for the first time…
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“Meet Max” – Mikelle
“Meet Max” – Mikelle Meet Max. Six years ago (almost seven), my life changed when he was born. He was…
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“Those Who ‘Get It'” – Janet
“Those Who ‘Get It’” – Janet My 7 year old son has CTD and Autism. He was diagnosed with CTD…
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“Seasons” – Nathan
“Seasons” – Nathan Well friends, the end of summer is again upon us. Children are heading back to school and…
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“Blessed to Have Her Here” – Sarah
“Blessed to Have Her Here” – Sarah So this is my second post about Ella, who is 7 in a…
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“CTD in Everyday Terms” – Sean
“CTD in Everyday Terms” – Sean I went to college with the intention of becoming a scientist. With that in…
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“Warning: Rant Up Ahead” – Beth
“Warning: Rant Up Ahead” – Beth I feel like my previous entries have been thoughtful and reflective, and admittedly, very…
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GAMT Newborn Screening Update – Kim
GAMT Newborn Screening Update – Kim In May, the ACD met with the Advisory Committee on Heritable Disorders in Newborns…
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“The Seizure Battle” – Heidi
“The Seizure Battle” – Heidi When Samantha was five, she began having absence seizures. The quick, least scary type of…
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RUSP Presentation – Heidi
RUSP Presentation – Heidi Hi. My name is Heidi Wallis. I am the mother of four children- two with GAMT…
