Virtual Town Hall with Ultragenyx: Updates on the Vigilan Study - Association for Creatine Deficiencies

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Virtual Town Hall with Ultragenyx: Updates on the Vigilan Study

October 14, 2022 @ 1:00 pm - 2:30 pm MDT

Do you have questions about the recent changes announced by Ultragenyx to the Vigilan Natural History Study? ACD is hosting a virtual town hall event on Friday, Oct. 14, from 12 noon – 1:30pm PT with Ultragenyx representatives and Dr. Judi Miller, the Coordinating Principal Investigator for the Vigilan study, to answer your questions. You can read a letter from Ultragenyx announcing changes to the Vigilan study here. Please register and submit your questions here by Friday, September 23.

Details

Date:
October 14, 2022
Time:
1:00 pm - 2:30 pm MDT

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