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Author: Odez Hosting

Conferences

“Three Lessons from the First ACD Patient and Family Symposium” – Laura

ByOdez Hosting September 11, 2018October 27, 2022

“Three Lessons from the First ACD Patient and Family Symposium” – Laura On a balmy night in late July we…

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Conferences | Events

“Special Education” – Celeste

ByOdez Hosting August 31, 2018October 27, 2022

“Special Education” – Celeste Wow! I’m still processing all of the things I learned from the 2018 conference in Austin….

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CCDS Family Stories | Creatine Transporter Deficiency (CTD)

“The Feeding Tube Post” – Nathan

ByOdez Hosting August 20, 2018October 27, 2022

“The Feeding Tube Post” – Nathan Good day friends! For this blog, I thought I would write about something I…

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Conferences | Events

“It’s so Austin…” – Shelly

ByOdez Hosting August 6, 2018October 27, 2022

“It’s so Austin…” – Shelly “It’s so Austin…” I heard that sentence a lot the weekend of July 27-29. I…

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Sonnet walking smiling
CCDS Family Stories | GAMT Deficiency

“Enriching Her Life With Therapies” – Randi

ByOdez Hosting June 29, 2018October 14, 2025

“Enriching Her Life With Therapies” – Randi Since Sonnet wasn’t diagnosed with GAMT until she was seven-years-old, she is severely…

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CCDS Family Stories | Creatine Transporter Deficiency (CTD)

“Let It Be” – Amy

ByOdez Hosting June 21, 2018October 27, 2022

“Let It Be” – Amy As a mom of a child with a rare condition, particularly of my Ben who…

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CCDS Family Stories | Creatine Transporter Deficiency (CTD)

“That Friend” – Shelly

ByOdez Hosting June 15, 2018October 27, 2022

“That Friend” – Shelly I feel like all us parents of special need kiddos have that one person who is…

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“Summer!” – Laura
CCDS Family Stories | GAMT Deficiency

“Summer!” – Laura

ByOdez Hosting June 11, 2018October 14, 2025

“Summer!” – Laura Summer is the most coveted time of the year around our house… AND IT’S HERE!!! Both boys…

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CCDS Family Stories | Creatine Transporter Deficiency (CTD)

“Realignment” – Nathan

ByOdez Hosting May 30, 2018October 27, 2022

“Realignment” – Nathan Good day again readers! I hope everyone has been enjoying the warmer days and (hopefully) sunny weather. …

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CCDS Family Stories | Creatine Transporter Deficiency (CTD)

“Perseveration of Speech” – Janet

ByOdez Hosting May 23, 2018October 27, 2022

“Perseveration of Speech” – Janet Hi everyone out there! I hope everyone is doing great. Just to fill you in…

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