CCDS Awareness Day - Association for Creatine Deficiencies

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CCDS Awareness Day

February 1, 2018

Ty and Paige wearing We are Rare t-shirts for CCDS day.

CCDS Awareness Day

Thursday, February 1, 2018

It’s official! February 1st is “Cerebral Creatine Deficiency Syndrome Awareness Day.”
Help spread awareness of CCDS by celebrating this day in your community.
We kicked off our first celebration of CCDS day in 2017 and are already working on plans to make 2018 even better!

Some ideas for individuals in their hometown include:

  • Create a personalized campaign on our Crowdrise Page (Scroll down to the orange button “Create a Fundraiser”, enter your CCDS story and pictures, post on Facebook and it links back to support ACD’s campaign!)
  • Speak at your child’s school about CCDS.
  • Wear CCDS apparel, available at the ACD Shop.
  • Distribute awareness brochures and share your story with pediatricians, developmental pediatricians, pediatric neurologists, and geneticists in your area. For brochures and other materials to share on CCDS Awareness day, please email
  • Blog, Tweet, Facebook, and Instagram your CCDS story and pictures of you spreading awareness on CCDS day, using the hashtags #ccds #ccdsday and #acd.


February 1, 2018
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