Walk Now For Autism Speaks
Walk Now For Autism Speaks Angel Stadium Anaheim, California December 6, 2015
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Community Events
CCDS Day & Rare Disease Day
CCDS Day & Rare Disease Day In 2017 we celebrated our first Cerebral Creatine Deficiency Syndrome Awareness Day on February 1st. This is a fitting time of year to recognize the importance of these rare disorders, as the world-wide Rare Disease Day falls on February 28th. The month was filled with posts of support and […]
Walk For Strength
Saturday, June 10th Host a local walk, join an existing team, or make a donation of support! Here’s how: To host a local walk: Choose a Team Name, Walk Location, and Start Time. Locations may include neighborhoods, parks, hike and bike trails, school tracks, etc. Get Registered! Register Here Be sure to enter your Team Name […]
CCDS Awareness Day
CCDS Awareness Day Thursday, February 1, 2018 It's official! February 1st is "Cerebral Creatine Deficiency Syndrome Awareness Day." Help spread awareness of CCDS by celebrating this day in your community. We kicked off our first celebration of CCDS day in 2017 and are already working on plans to make 2018 even better! Some ideas for individuals […]
Rare Disease Day
Rare Disease Day Wednesday, February 28, 2018 CCDS are considered rare disorders and the ACD is proud to support Rare Disease Day. Help us join with other rare disease groups in spreading Rare Disease and CCDS Awareness on February 28, 2018. Rare Disease Day is a worldwide initiative. For more information on this international event, […]
Walk For Strength
Walk For Strength June 9, 2018 Registration is now open for the third annual Walk for Strength. This walk is meant to be participated in by all CCDS families in their local communities. Your group may be as small as 1 or as large as you can recruit! Email us for more ideas and flyers […]
Walk for Strength 2020
Sunday, August 2nd, 2020 This year we're walking as one big team! This year, while respecting local health guidance, CCDS families, friends, researchers, and supporters worldwide will be walking in support of those affected by GAMT, AGAT, and CTD. Hold your family's walk when and where it suits you and join us afterward at the Community Social Hour. #socialdistance […]
$15 – $500
Keynote Speaker – Dr. Judith Miller
Keynote: Lessons Learned From 2 Years of the Vigilan Natural History Study Dr. Judith Miller, Ph.D., Children's Hospital of Pennsylvania Click Here for the Direct Webinar Link Dr. Judith Miller is a clinical psychologist with 25 years’ experience in developmental disorders. She has a joint appointment as Assistant Professor in both the Psychiatry and Pediatrics […]
Free
Holiday Heroes Fundraiser
Holiday Heroes is our annual fundraiser and this year we will be fundraising to support the continuation of Gene Therapy Advancement Awards in 2021 as well as drug development research. Visit our Holiday Heroes page to learn more and donate now! Learn more about the initiatives funded by the 2020 Holiday Heroes at ACD's research […]