CCDS Day 2021
CCDS Day 2021 is February 1st. How has CCDS changed your story? If you’d like to participate in our #CCDSDay2021 Campaign, send us a picture of your child/family and […]
CCDS Day 2021 is February 1st. How has CCDS changed your story? If you’d like to participate in our #CCDSDay2021 Campaign, send us a picture of your child/family and […]
February 28th is Rare Diseases Day. This year, we will raise awareness AND empower research! Stay tuned for the launch of our CreatineInfo Registry. Together we will search for answers […]
The ACD, in partnership with NORD, is launching a Natural History Study Patient-reported Registry on March 15th. Join the registry and help us further research for a better quality of […]
The Caregiver Session is scheduled one week prior to the main conference sessions and will focus on parent training in the following categories: supporting sibling relations and the non-CCDS sibling […]
Learn more about the Expert Panel webinar series and register here.