Events from February 1, 2021 – October 6, 2023 › Community Events › – Association for Creatine Deficiencies

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CCDS Day 2021

  CCDS Day 2021 is February 1st. How has CCDS changed your story? If you’d like to participate in our #CCDSDay2021 Campaign, send us a picture of your child/family and […]

Rare Disease Day 2021

February 28th is Rare Diseases Day. This year, we will raise awareness AND empower research!  Stay tuned for the launch of our CreatineInfo Registry. Together we will search for answers […]

CreatineInfo Registry Launch

The ACD, in partnership with NORD, is launching a Natural History Study Patient-reported Registry on March 15th. Join the registry and help us further research for a better quality of […]

2023 CCDS Virtual Conference – Caregiver Session

The Caregiver Session is scheduled one week prior to the main conference sessions and will focus on parent training in the following categories: supporting sibling relations and the non-CCDS sibling […]