Rare Disease Day 2021
February 28th is Rare Diseases Day. This year, we will raise awareness AND empower research! Stay tuned for the launch of our CreatineInfo Registry. Together we will search for answers […]
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Community Events
CreatineInfo Registry Launch
The ACD, in partnership with NORD, is launching a Natural History Study Patient-reported Registry on March 15th. Join the registry and help us further research for a better quality of […]
2023 CCDS Virtual Conference – Caregiver Session
The Caregiver Session is scheduled one week prior to the main conference sessions and will focus on parent training in the following categories: supporting sibling relations and the non-CCDS sibling […]
CCDS Expert Panel Webinar #4
Learn more about the Expert Panel webinar series and register here.