CreatineInfo Registry Launch
The ACD, in partnership with NORD, is launching a Natural History Study Patient-reported Registry on March 15th. Join the registry and help us further research for a better quality of […]
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Community Events
2023 CCDS Virtual Conference – Caregiver Session
The Caregiver Session is scheduled one week prior to the main conference sessions and will focus on parent training in the following categories: supporting sibling relations and the non-CCDS sibling […]
CCDS Expert Panel Webinar #4
Learn more about the Expert Panel webinar series and register here.