Events from November 28, 2023 – December 3 – Association for Creatine Deficiencies

Holiday Heroes ACD's most important fundraising event of the year! Our goal is to raise $350,000 for our exciting 2024 research initiatives. Be a part of this community effort and […]

Sibshops have three sessions based on age group. 12:00-12:45 ET youngest group (ages 5-7) 1:00-2:00 ET middle group (ages 8-12) 2:00-3:00 ET oldest group (ages 13+) Learn more and register […]

CCDS Day happens annually on February 1 when we unite our efforts as a community to raise awareness of Cerebral Creatine Deficiency Syndromes! This year, join us as we launch […]

Sibshops have three sessions based on age group. 12:00-12:45 ET youngest group (ages 5-7) 1:00-2:00 ET middle group (ages 8-12) 2:00-3:00 ET oldest group (ages 13+) Learn more and register […]

Walk For strength is an event that unites people from all over the world in raising CCDS awareness and raising funds to support the ACD Patient Strong program. Be part of […]

The 2024 CCDS Scientific + Patient Symposium will be held at the Little America Hotel in Salt Lake City, Utah. Talks will be presented all day June 29 & 30. […]

Champions for a Cure Gala Fundraiser & Silent Auction Benefitting ACD’s Patient Strong Fund Reserve your ticket Sponsor the gala Online Auction June 30, 2024 • 6:00 – 10:00 PM […]

Are you interested in participating in PAReNts 2.0 or learning more about the exciting plans for this project? We are hosting a Zoom Webinar on September 6, 2024 at 3 […]

Sibshops have three sessions based on age group. 12:00-12:45 ET youngest group (ages 5-7) 1:00-2:00 ET middle group (ages 8-12) 2:00-3:00 ET oldest group (ages 13+) Learn more and register […]