CCDS Day 2024
CCDS Day happens annually on February 1 when we unite our efforts as a community to raise awareness of Cerebral Creatine Deficiency Syndromes! This year, join us as we launch […]
CCDS Day happens annually on February 1 when we unite our efforts as a community to raise awareness of Cerebral Creatine Deficiency Syndromes! This year, join us as we launch […]
Sibshops have three sessions based on age group. 12:00-12:45 ET youngest group (ages 5-7) 1:00-2:00 ET middle group (ages 8-12) 2:00-3:00 ET oldest group (ages 13+) Learn more and register […]
Walk For strength is an event that unites people from all over the world in raising CCDS awareness and raising funds to support the ACD Patient Strong program. Be part of […]
The 2024 CCDS Scientific + Patient Symposium will be held at the Little America Hotel in Salt Lake City, Utah. Talks will be presented all day June 29 & 30. […]
Champions for a Cure Gala Fundraiser & Silent Auction Benefitting ACD’s Patient Strong Fund Reserve your ticket Sponsor the gala June 30, 2024 • 6:00 – 10:00 PM Little America […]
Sibshops have three sessions based on age group. 12:00-12:45 ET youngest group (ages 5-7) 1:00-2:00 ET middle group (ages 8-12) 2:00-3:00 ET oldest group (ages 13+) Learn more and register […]
Sibshops have three sessions based on age group. 12:00-12:45 ET youngest group (ages 5-7) 1:00-2:00 ET middle group (ages 8-12) 2:00-3:00 ET oldest group (ages 13+) Learn more and register […]