“Are You a 21st Century Pioneer?” – Nancy Pioneer. Verb. A person who is among the first to develop or be the first to use or apply (a new method, […]
“Pilates” – Beth When it became clear that I would be caring for my son into his adult life, I knew that I had to make sure my body and […]
“Creating Capacity” – Janet When I was faced with the CTD diagnosis of my son, who is now 10, I felt a huge, monstrous, feeling of overwhelming and it never […]
“Atypical Adventures: An Introduction” – Nathan Hello again, friends! I know it has been a while since I have updated everyone on what’s going on in our daily lives. Well, […]
“WE’RE IN THIS TOGETHER, Like It or Not” – Nancy I know I’m one of the lucky ones. We still have our son. There was a moment in time where […]
How Pharmacogenomics Hopes to Improve the Treatment of Cerebral Creatine Deficiencies Kim Tuminello, Director of Advocacy for ACD, recently sat down with Dr. Ruben Bonilla Guerrero, who is the Medical […]
The Paradox of an Aging Special Needs Child” – Beth Standing in front of my kitchen sink in the cold, blue, January dawn, I run the warm water to wipe […]
“WHO’S GOING TO PROTECT HIM WHEN I’M GONE?” – Nancy Over-protective. Controlling. Helicopter Mom. Whatever you call it, that’s who I am. I’ve been this way since my first child […]
“CCDS Seizures” – Denise Morita, MD Our son Dylan, who is 5 and was diagnosed with CTD earlier this year, was originally diagnosed with epilepsy at the age of 2. […]
“New Year, New Boy?!” – Laura Hey everyone! I hope the new year is off to a great start! Levi has been in first grade this year, and absolutely LOVES […]