“Grateful” – Mikelle I’m grateful for so many little miracles in my life. Every time I watch Max play soccer or hear him bounce the basketball, I am grateful. There […]
“Thanksgiving” – Nathan Thanksgiving is upon us friends, and let me personally wish each and every reader a Happy Thanksgiving! (Those of you not in the United States, feel free […]
“Less Than One Percent” – Kelly I would have never guessed in a million years that I would have a child who has CTD. I mean, who has even ever […]
“Bravery” – Beth I woke up this morning with anxiety. We needed to change my daughter’s g-tube today. Through the course of treatment for GAMT, it became clear that she needed […]
“Time” – Janet Sometimes, as a parent you get sucked into the daily grind of routines and chaos. It’s life with kids. And this life and its fast-paced schedule zooms […]
Creatine Transporter Deficiency – Judith Miller, PhD By Judith Miller, PhD, and Rebecca Thomas, MA – The Children’s Hospital of Philadelphia Creatine Transporter Deficiency (CTD) – work presented at the […]
“Amazing Kids” – Nathan Greetings again friends! I hope this post finds everyone well as we move headlong into the fall season. Last month I had the opportunity to celebrate […]
“William’s Big School Journey” – Jess My son William (5), has CTD, and started big school for the first time this year. William has always been very passive, largely due to […]
“Meet Max” – Mikelle Meet Max. Six years ago (almost seven), my life changed when he was born. He was my first child and the most amazing gift to me […]