“Perseveration of Speech” – Janet Hi everyone out there! I hope everyone is doing great. Just to fill you in on our family, we have 4 kiddos, 1 of them […]
“The Advocate, The Meanie, The Mom…” – Regina My oldest child, Chelsi, my first born, my 18th birthday present, and my graduation gift all bundled into my arms forever changed […]
“Traveling with Special Needs” – Randi Everyday life with special needs children can be challenging. But one adjusts to the “new normal” and establishes a routine that works at home. […]
“Speed Doesn’t Matter, Forward Is Forward” – Shelly If you read my previous post then you know we received our CTD diagnosis at 9 months old. If you didn’t… well, […]
“Happy Kid” – Laura One of Levi’s greatest attributes is his positive attitude. Things really can’t get him down. This has been an interesting issue when it comes to discipline […]
“With a Little Help from My Friends” – Amy Before we found out about Ben’s Creatine Transporter Deficiency (CTD) diagnosis, he was diagnosed with infantile scoliosis due to his hypotonia […]
Our typical day and what our boys experience with CTD.
“The Power of Music” – Beth “Have you ever had non-verbal students in your choir before?” I asked the junior high choir director a few months into Benny’s 7th-grade year. […]
“Do We Have a Bad Neighbor?” – Janet Happy 2018 everyone!! We live in Canada and have been dealing with a lot of cold weather and snow here. It’s been […]
“Grieving the Missed Milestones” – Regina We’ve all been there. Those moments when we witness our kids- or grandkids- struggling to accomplish a simple task which others seem to be […]