Rare Disease Day

Wednesday, February 28, 2018

CCDS are considered rare disorders and the ACD is proud to support Rare Disease Day.
Help us join with other rare disease groups in spreading Rare Disease and CCDS Awareness on February 28, 2018.

Rare Disease Day is a worldwide initiative. For more information on this international event, visit rarediseaseday.org.

For more information about Rare Disease Day in the US, click here.

Shop and support ACD to get your CCDS Awareness merchandise today!

For ideas of how to participate in rare disease day and both support this initiative and raise awareness of Cerebral Creatine Deficiency Syndromes, Click Here.

Rare Disease Day CCDS Feature:

Texas Children’s Hospital National featured this CCDS story for Rare Disease Awareness Week: “My Son’s Story”
http://www.texaschildrensblog.org/2015/02/national-rare-disease-awareness-week-my-sons-story/