Events from September 17, 2016 – April 8, 2019 › Exhibits & Workshops › – Association for Creatine Deficiencies

Attendance at Global Genes Rare Patient Advocacy Summit

Attendance at Global Genes Rare Patient Advocacy Summit Huntington Beach, CA September 22 – 24, 2016 Global Genes is the leading rare disease advocacy organization with global reach to the […]

CTD Workshop

CTD Workshop Paris, France December 5 - 6, 2016 The ACD was honored to attend the CTD workshop, organized by Dr. Aurore Curie, Dr. Vincent des Portes and representatives of […]

American College of Medical Genetics Conference 2017

American College of Medical Genetics Conference 2017 Phoenix, AZ March 22-24, 2017 The 2017 ACMG conference in Phoenix, Arizona was well attended by geneticists from all over the world as […]

Rockin’ For A Cause

Rockin' For A Cause Dripping Springs, TX Saturday, September 30, 2017 ACD’s first ever benefit concert, "Rockin' for a Cause", was held in Austin, Texas at the Mercer Street Dance […]

Children’s Neurology Society Meeting 2017

Children's Neurology Society Meeting 2017 Kansas City, MO October 4-6, 2017 At this meeting, we were able to speak to many children's neurologists about the need for early diagnosis of […]

CCDS Workshop at SIMD

For more information, and to register for this event, please visit creatineinfo.org/simd.