“Seasons” – Nathan Well friends, the end of summer is again upon us. Children are heading back to school and hopefully, soon the cool air of fall will again give […]
“Blessed to Have Her Here” – Sarah So this is my second post about Ella, who is 7 in a few weeks’ time! It’s scary how quickly they grow. In […]
“CTD in Everyday Terms” – Sean I went to college with the intention of becoming a scientist. With that in mind, I studied biology and chemistry. While I never ended […]
“Oops, Sorry!” – Jess Today I am writing about one of William’s favourite phrases – “Oops, sorry!”. He is 5 and has Creatine Transporter Deficiency (CTD).
“The Happiest Person I Know” – Kyle A couple of months ago, I was asked to write a blog about having a brother with CTD. I promptly dragged my feet […]
GAMT Newborn Screening Update – Kim In May, the ACD met with the Advisory Committee on Heritable Disorders in Newborns and Children (ACHDNC). GAMT was nominated for inclusion on the […]
“Spiro and I” – Janet My Creatine Transporter Deficiency journey began September 5th, 2009 with the birth of my son Spiro. Although I didn’t know it at the time, our […]
“Run” – Nathan Greetings again friends! While I had a post all written about expectations for this week, I just felt like this topic weighed heavier on my heart, so […]
“Raising Reid” – Whitnie They say it takes a village to raise a child. I believe that to be true. If left up to me alone, I’m not sure I’d survive […]
“This Too Shall Pass” – Nathan Hello again friends, thanks for taking the time to once again visit with our interesting family adventures. The past several weeks have been good […]