“Speed Doesn’t Matter, Forward Is Forward” – Shelly If you read my previous post then you know we received our CTD diagnosis at 9 months old. If you didn’t… well, […]
“With a Little Help from My Friends” – Amy Before we found out about Ben’s Creatine Transporter Deficiency (CTD) diagnosis, he was diagnosed with infantile scoliosis due to his hypotonia […]
Our typical day and what our boys experience with CTD.
“Do We Have a Bad Neighbor?” – Janet Happy 2018 everyone!! We live in Canada and have been dealing with a lot of cold weather and snow here. It’s been […]
“Grieving the Missed Milestones” – Regina We’ve all been there. Those moments when we witness our kids- or grandkids- struggling to accomplish a simple task which others seem to be […]
“Expectations” – Nathan Good day friends! As I am traveling a bit with work right now, I have begun to think a few deep thoughts on what it is that […]
“Back to Blogging” – Janet I love reading special needs blogs. They have lifted me up and carried me through some really tough years with my son. Ironically, it’s been […]
“Because” – Amy At the end of the year, I like to reflect back so I can look forward and plan for the new year. 2017 has been a challenging, […]
“The Magic of Christmas” – Laura There was a time I wondered if we would ever experience “normal” holidays with our cute Levi. We would, of course, go through the […]
“Got to Get You Into My Life” – Amy After learning about our son’s Creatine Transporter Deficiency (CTD) this past January, we started down the path to begin supplementing with […]