Q&A With Dr. Ton DeGrauw— New Board Member The Association for Creatine Deficiencies (ACD) welcomes Dr. Ton DeGrauw as part of the Scientific Medical Advisory Board (SMAB)! Dr. DeGrauw joins […]
“Perseveration of Speech” – Janet Hi everyone out there! I hope everyone is doing great. Just to fill you in on our family, we have 4 kiddos, 1 of them […]
“Expectations” – Nathan Good day friends! As I am traveling a bit with work right now, I have begun to think a few deep thoughts on what it is that […]
“Picturing the Future” – Beth During the winter break, we undertook the daunting task of organizing digital photos from the past fifteen years. We take a lot of pictures, so […]
“Back to Blogging” – Janet I love reading special needs blogs. They have lifted me up and carried me through some really tough years with my son. Ironically, it’s been […]
“The Magic of Christmas” – Laura There was a time I wondered if we would ever experience “normal” holidays with our cute Levi. We would, of course, go through the […]
“Got to Get You Into My Life” – Amy After learning about our son’s Creatine Transporter Deficiency (CTD) this past January, we started down the path to begin supplementing with […]
“A Boy and His Dog” – Laura Trevor and I both grew up with dogs as family pets. We knew we would one day get a family dog, too. We […]
“Getting Better” – Amy Ben’s recent Creatine Transporter Deficiency (CTD) diagnosis has hit me hard emotionally, so I thought that an honest account of these emotions could be cathartic. I […]
“What About Me?” – Kelly I’ve made no secret that our family life is somewhat different from the norm. Our home life is different as we live with 2 of […]