“Our Life with Epilepsy” – Nathan Hello again, CCDS family, sorry it has been a while since I have contributed to the blog, but I am thankful to have the […]
“Let It Be” – Amy As a mom of a child with a rare condition, particularly of my Ben who has Creatine Transporter Deficiency (CTD), it’s so easy to let […]
“Whoa” – Janet Do you ever have those days or seasons where things are just ‘alot’? I know my family goes through those days. They are hard moments… they seem […]
“A Day in the Life” – Amy I thought it would be beneficial to share a profile of our four, almost five, year old boy with Creatine Transporter Deficiency (CTD) […]
“The Long and Winding Road” – Amy Not having a diagnosis for your child when you know something is wrong is like driving your car somewhere you’ve never been before […]
“Franco’s Journey” – Lisa This is our story and our journey that led to our son’s diagnosis of CTD. It has been a long journey to say the least and […]
“Our Journey” – Kelly When Trenton was born in New York, he weighed 7 lbs 2 ounces. Before we left the hospital, he dropped to 6lbs 12 ounces, by our […]