“Seasons” – Nathan Well friends, the end of summer is again upon us. Children are heading back to school and hopefully, soon the cool air of fall will again give […]
“Blessed to Have Her Here” – Sarah So this is my second post about Ella, who is 7 in a few weeks’ time! It’s scary how quickly they grow. In […]
“Warning: Rant Up Ahead” – Beth I feel like my previous entries have been thoughtful and reflective, and admittedly, very therapeutic for me. This one is a little rough around the […]
“The Happiest Person I Know” – Kyle A couple of months ago, I was asked to write a blog about having a brother with CTD. I promptly dragged my feet […]
“Spiro and I” – Janet My Creatine Transporter Deficiency journey began September 5th, 2009 with the birth of my son Spiro. Although I didn’t know it at the time, our […]
“The Seizure Battle” – Heidi When Samantha was five, she began having absence seizures. The quick, least scary type of seizures (still scary) where she would seem to look up […]
“The One in the Middle” – Beth With the GAMT diagnosis of two of our children, our unaffected middle child immediately became the odd man out. Even my husband and I, […]
“Raising Reid” – Whitnie They say it takes a village to raise a child. I believe that to be true. If left up to me alone, I’m not sure I’d survive […]