“Expectations” – Nathan Good day friends! As I am traveling a bit with work right now, I have begun to think a few deep thoughts on what it is that […]
“Back to Blogging” – Janet I love reading special needs blogs. They have lifted me up and carried me through some really tough years with my son. Ironically, it’s been […]
“Whoa” – Janet Do you ever have those days or seasons where things are just ‘alot’? I know my family goes through those days. They are hard moments… they seem […]
“Getting Better” – Amy Ben’s recent Creatine Transporter Deficiency (CTD) diagnosis has hit me hard emotionally, so I thought that an honest account of these emotions could be cathartic. I […]
“1% Chance” – Laura GAMT is so rare, just getting diagnosed seems to be quite an ordeal. I like hearing everyone else’s journey, and having this connection. Here is our […]
“Why Getting a Diagnosis Is So Much More Than a Label” – Kelly My daughter Holly (9) & son Isaac (4) have recently been diagnosed with Guanidinoacetate Methyltransferase Deficiency (GAMT). […]
“On Valentine’s Day” – Nathan Well, it’s here friends, February 14th , and according to the automatic reminder on my phone, that means it is time to stop at the […]
“My little guy” – Jane My little guy is now 8 years old and was diagnosed with Creatine Transporter Deficiency (CTD) at 19 months of age – well before we […]
“The Three P’s” – Beth My husband likes tattoos. Really likes them. I do not have one spot of ink on my body. An indecisive person like myself is not […]
“Five Years… Then and Now” – Janet When my son Spiro was first diagnosed with CTD, I thought it would mean better management, a quick fix, and a real turn […]