“My little guy” – Jane My little guy is now 8 years old and was diagnosed with Creatine Transporter Deficiency (CTD) at 19 months of age – well before we […]
“The Three P’s” – Beth My husband likes tattoos. Really likes them. I do not have one spot of ink on my body. An indecisive person like myself is not […]
“Five Years… Then and Now” – Janet When my son Spiro was first diagnosed with CTD, I thought it would mean better management, a quick fix, and a real turn […]
“The Day That Changed My Life” – Whitnie There are certain days that have a significance in all of our lives. Something that happened on a day that changed the […]
“Levi” – Laura My name is Levi. I am 5 years old and ALL boy. I love everything life has to offer me. I am an easy going, BUSY, happy, […]
“Our Gifts” – Nathan Happy New Year friends! Have you made your resolutions yet? To be honest I don’t do resolutions, I plan for contributions. So, with that in mind, […]
“Strongest Kids God Created” – Sarah I thought this post I would write about some of the things I guess us parents all go through, at some point or other. […]
“Asking for Help” – Beth I broke my arm about two months ago. I’m 41 and I tried to ride a skateboard. It didn’t work out. It seemed like a […]
“CTD Workshop Recap” – Whitnie When they say Paris is magical, it’s true. The ACD was honored to attend the CTD workshop, organized by Dr. Aurore Curie, Dr. Vincent des […]
“I’d Go Anywhere for Him” – Whitnie Every time I pack my bags I get this funny feeling. It’s true that I hate leaving them behind, but I can’t not […]