“Picturing the Future” – Beth During the winter break, we undertook the daunting task of organizing digital photos from the past fifteen years. We take a lot of pictures, so […]
#SeasonofSmiles – Whitnie As we approach the holiday season, it is customary to reflect and give thanks for the blessings we have. It’s also the season of giving and a […]
“#MyGivingStory” – Jerry This story was shared with #MyGivingStory in connection with the Giving Tuesday initiative. #MyGivingStory shares the stories of everyday heroes giving their time and talents to the […]
“A Day in the Life” – Amy I thought it would be beneficial to share a profile of our four, almost five, year old boy with Creatine Transporter Deficiency (CTD) […]
“What Are the Odds?” – Laura GAMT is really, really, rare. We all know that! I am sure quite a few of us have been told to buy a lottery […]
“Milestones” – Laura Today watching Levi peddle his bike as fast as his little legs would take him off the curb, as he demonstrated and showboated his new tricks on […]
“Getting Better” – Amy Ben’s recent Creatine Transporter Deficiency (CTD) diagnosis has hit me hard emotionally, so I thought that an honest account of these emotions could be cathartic. I […]
“What About Me?” – Kelly I’ve made no secret that our family life is somewhat different from the norm. Our home life is different as we live with 2 of […]
“The Long and Winding Road” – Amy Not having a diagnosis for your child when you know something is wrong is like driving your car somewhere you’ve never been before […]
“Why Us?!” – Laura Sometimes it feels like everything just piles up – from the challenges of being diagnosed, seizures, hospital stays, to the complications we encounter every day.