“Hook ‘em Horns” – Laura I know those who attended the conference in Texas this summer will all agree that is was fabulous. It was so great getting to meet […]
“Life With CTD” – Chelsi Hello, my name is Chelsi and I have CTD. 23 years have come and gone before I even knew about this condition. If it wasn’t […]
“#MyGivingStory” – Jerry This story was shared with #MyGivingStory in connection with the Giving Tuesday initiative. #MyGivingStory shares the stories of everyday heroes giving their time and talents to the […]
“What Are the Odds?” – Laura GAMT is really, really, rare. We all know that! I am sure quite a few of us have been told to buy a lottery […]
“Milestones” – Laura Today watching Levi peddle his bike as fast as his little legs would take him off the curb, as he demonstrated and showboated his new tricks on […]
“Getting Better” – Amy Ben’s recent Creatine Transporter Deficiency (CTD) diagnosis has hit me hard emotionally, so I thought that an honest account of these emotions could be cathartic. I […]
“What About Me?” – Kelly I’ve made no secret that our family life is somewhat different from the norm. Our home life is different as we live with 2 of […]
“Travel Supplements” – Laura We recently returned from a very fun and needed vacation to Disneyland! It was magical with a 5 and 1 year old. We packed in all […]
“The Long and Winding Road” – Amy Not having a diagnosis for your child when you know something is wrong is like driving your car somewhere you’ve never been before […]
“The More Things Change…” – Nathan Greetings friends! Well, it is that time again as I am once more honored to be a part of your daily intake of reading. […]